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Special Siblinghood

Summary

This publication relates to programs for brothers and sisters of

children with developmental disabilities, such as Cerebral Palsy

(CP), autism, intellectual disabilities, various syndromes, etc.

Background

1.

Special siblinghood in the familial space

The birth of a child with disabilities is experienced by families as

a crisis, forcing them to face difficulties and challenges that

require each family member to rearrange many areas of their

lives. Parenthood, as imagined before the birth of the child with

disability, changes. Doubts, unfamiliar situations and fears are

part of the experience of special parenthood.

Parenthood and siblinghood are interwoven and influence each

other to a great degree. The presence of a sibling with a

developmental disability influences the development of each

child in the family. This influence may be a source of difficulty

and distress, as much as it can be positive and encouraging of

growth (Seligman, 1991; Nixon & Cummings, 1999). Research

in this field yields inconsistent and sometimes contradictory

results. In recent years, prevalent approaches, which are based

on theories of personal growth and growth resulting from crisis,

point to the fact that siblings of children with intellectual

disabilities report of growth more than siblings of children

without intellectual disabilities (Vardi, 2005).

As a child with disabilities enters a family, the siblings respond

to her and to her needs. Their interaction with their parents

changes. In addition, the relationships within the sibling sub-

system may also change. For example, the chronological order

of birth loses its significance as a younger sibling